Ode to B
Our family is quite
different from those around we know
See, usually each
child gains independence as they grow
Learns toothbrushing
and getting dressed, and how to talk and smile
Or maybe ride a bike,
or cook, or run for miles and miles
Now B’s a rare and
precious gem; unique I guess you’d say
He’s almost eight
years old but hasn’t spoken to this day
He tries so hard to
let us know what’s going on inside
But sometimes it’s too
tricky and he ends up way too tired
The memories of baby
groups are hard to bring to mind
I sat there smiling
outwardly, while way deep down I cried.
The other mums bragged
proudly of their babies expertise
And me? Well, I had
nothing- it brought me to my knees
While toddlers started
chatting, and copying mum and dad
B screamed and roared
and cried a lot; my heart it hurt so bad
I tried all the usual
parent tricks to try and help my boy
But nothing worked
(except sometimes a loud and flashy toy!)
As time went on the
fog let up- we had a clearer view
B was slow no matter what
we did or didn’t do
A whole new host of
issues to deal with day-by-day
A brand new
destination, but we didn’t know the way
Appointments,
meetings, therapies, carers, respite, jobs
The endless stream of
admin that never seems to stop
People say “I couldn’t…’ but we really have
no choice.
Our child’s so very
vulnerable- we NEED to be his voice
Every day is
different, but the common running thread
Is that B needs
someone there with him right til he goes to bed.
The things you take
for granted which your able kids can do,
Are things we need to
do for B; for him it all seems new.
Despite the tricky
challenges a special child can bring,
He’s taught me how to
laugh through tears; instead of crying, sing.
The world puts so much
value on measuring our worth,
But worth cannot be
measured for each person on this earth.
Who can price an
attitude that valiantly soldiers on?
A laugh? A smile that
lights up hearts? A softly whispered song?
The touch that wipes a
tear away, the deep connected life
That bonds a son to mother,
and a husband to his wife
Next time you see a
child like B, I urge you to look deep
To see beyond your
first glance to the soul that’s underneath
Disabled? Yes. But
more than that, a strong and gorgeous boy
Who causes lots of
chaos, but brings enormous joy.
Beautiful poem Lucy, sending you lots of love, strength and courage. xxx
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