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Showing posts from July, 2014

The Dead Seagull Society

So lovelies. Today life sucks. I’m not asking for pity, or sympathy, or any of that mushy stuff; it is what it is. I think it’s down to a combo of factors; tiredness, getting shredded on a daily basis, missing family and perpetually grieving the life we watch everyone else with kids our age living. By shredded I don’t mean that 30-day shred phenomenon that’s been going round on the app store; purposely putting my body through torment on a daily basis is something I can live without. Funny that. Shredded is perhaps too harsh a word but for the last three months my arms and the arms of my kiddies (particularly the littlest) have been covered in claw marks and small teeth imprints; the physical manifestation of the frustration my boy must feel constantly. We are entering the fifth week of a medicated B, and so far we are still seeing multiple seizures every day, with new types developing on a regular basis. I’m the reincarnation of Scrooge and Christmas when people mention their excited …

Princess Bess and The Big Blue Problem

I wrote this story for someone I know who has a distinctive and visual disability (we're going to make a book together), and as I was reading back over it I thought it was quite pertinent to B also. The difference with B is he is absolutely unaware of the stares, it's my other kids that have to deal with the barrage of attention when we're out. Attention for all the wrong reasons might I add! Enjoy..

Princess Bess and the Big Blue Problem
Once upon a time in Amarillo Land there lived a princess. Her name was Bess and she lived in a castle with King Daddy, Queen Mummy and her baby brother Prince Tam. The castle had high walls and was decorated with beautiful flags and it was most definitely Princess Bess’s favourite place to be.When Princess Bess was a baby, she spent lots of time in the castle with Queen Mummy and King Daddy. Being in the castle made her feel safe and warm. Princess Bess was a little different to everyone else in Amarillo Land. All the other people she knew h…